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Metadata Correction: Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

Metadata Correction: Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

In the paper by Ortiz et al, “Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns” (Interact J Med Res 2018;7(1):e3), author Nicole Lipitz’s last name was incorrectly spelled as “Lipintz”.

Romina Alicia Ortiz, Steven Witte, Arvin Gouw, Ana Sanfilippo, Richard Tsai, Danielle Fumagalli, Christine Yu, Karla Lant, Nicole Lipitz, Jennifer Shepphird, Fidelia B Alvina, Jimmy Cheng-Ho Lin

Interact J Med Res 2018;7(1):e10707


Communications Between Volunteers and Health Researchers during Recruitment and Informed Consent: Qualitative Content Analysis of Email Interactions

Communications Between Volunteers and Health Researchers during Recruitment and Informed Consent: Qualitative Content Analysis of Email Interactions

Nicole volunteers to help the research in the face of frustrating symptoms. She anticipates that sharing her story might help herself and the research, and hopes to gain insight into disease and pain management: Hello Anne My name is Nicole.

Anne Townsend, Zubin Amarsi, Catherine Backman, Susan M Cox, Linda C Li

J Med Internet Res 2011;13(4):e84


Supporting Self-Care for Families of Children With Eczema With a Web-Based Intervention Plus Health Care Professional Support: Pilot Randomized Controlled Trial

Supporting Self-Care for Families of Children With Eczema With a Web-Based Intervention Plus Health Care Professional Support: Pilot Randomized Controlled Trial

Nicole is unusual in our sample in that she did not feel comfortable with the Internet and, therefore, really valued the nurse input: To be honest I’m not a massive kind of computer person, I don’t work with computers...So it’s probably more to do with that

Miriam Santer, Ingrid Muller, Lucy Yardley, Hana Burgess, Hannah Selinger, Beth L Stuart, Paul Little

J Med Internet Res 2014;16(3):e70