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Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Legal, relational, and technical barriers can impede access to the data that enable public health agencies to act for the benefit of their communities. [1-3] Most of these barriers are at least indirectly associated with a need to protect the privacy of data subjects. Public health data custodians are acutely aware of these risks, but sometimes zealous overprotection of individuals’ privacy can harm communities [4].

Cason D Schmit, Meghan Curry O’Connell, Sarah Shewbrooks, Charles Abourezk, Fallon J Cochlin, Megan Doerr, Hye-Chung Kum

J Med Internet Res 2025;27:e70983

Participant Evaluation of Blockchain-Enhanced Women’s Health Research Apps: Mixed Methods Experimental Study

Participant Evaluation of Blockchain-Enhanced Women’s Health Research Apps: Mixed Methods Experimental Study

As these large datasets or “big data” grow in scope, they also become more susceptible and vulnerable to privacy risks (eg, data breaches, privacy violations, and unauthorized access) that can cause undue harm to participants, organizations, and society [5].

Madelena Y Ng, Jodi Halpern, Olivia Shane, Tina Teng, Michael Nguyễn, Casey Ryan Alt, Anaïs Barthe Leite, Sean Moss-Pultz, Courtney R Lyles, Coye Cheshire

JMIR Mhealth Uhealth 2025;13:e65747

Ethical Use of Social Media and Sharing of Patient Information by Medical Students at a University Hospital in Saudi Arabia: Cross-Sectional Survey

Ethical Use of Social Media and Sharing of Patient Information by Medical Students at a University Hospital in Saudi Arabia: Cross-Sectional Survey

Women were more likely than men to have private SM accounts (96/248, 39% and 43/154, 28%, respectively; P The association between cyberbullying, social media privacy status, social media privacy practices, and gender among the respondents (N=400). a Chi-square test. b Fisher exact test. Of all the participants, 60/400 (16%) reported experiencing cyberbullying.

Sara Farsi, Alaa Sabbahi, Deyala Sait, Raghad Kabli, Ghaliah Abduljabar

JMIR Med Educ 2025;11:e57812

Promises and Pitfalls of Internet Search Data in Mental Health: Critical Review

Promises and Pitfalls of Internet Search Data in Mental Health: Critical Review

One of the most important issues concerning the use of internet search data for mental health care research is privacy [53]. Uncertainty about users’ willingness to share data is particularly critical across diverse groups and countries, raising concerns about the feasibility of large-scale data collection and potential biases in the data obtained [53].

Alexandre Andrade Loch, Roman Kotov

JMIR Ment Health 2025;12:e60754

Implications of Public Disclosure of Personal Information in a Mobile Alert App for People Living With Dementia Who Go Missing: Qualitative Descriptive Study

Implications of Public Disclosure of Personal Information in a Mobile Alert App for People Living With Dementia Who Go Missing: Qualitative Descriptive Study

During the development of Community ASAP, we identified the need to understand how the rights of people living with dementia to self-determination and privacy are respected while using the alert system. The use of alert systems has raised ethical concerns about the privacy of people living with dementia [6,15].

Adebusola Adekoya, Christine Daum, Noelannah Neubauer, Antonio Miguel-Cruz, Lili Liu

JMIR Aging 2025;8:e64847

Perspectives of Hispanic and Latinx Community Members on AI-Enabled mHealth Tools: Qualitative Focus Group Study

Perspectives of Hispanic and Latinx Community Members on AI-Enabled mHealth Tools: Qualitative Focus Group Study

However, another participant described data sharing as a “double-edged sword” that would increase privacy concerns: I know that it is to improve the service or the product, but it is also like a double-edged sword, because your information goes into more hands so, if it is no longer completely clear to you how your information is handled, when it is already in the hands of other people. So, in that aspect, I would like to have a little more privacy.

Stephanie A Kraft, Shaan Chopra, Miriana C Duran, Janet A Rojina, Abril Beretta, Katherine I López, Russell Javan, Benjamin S Wilfond, Margaret Rosenfeld, James Fogarty, Linda K Ko

J Med Internet Res 2025;27:e59817

Smart Contracts and Shared Platforms in Sustainable Health Care: Systematic Review

Smart Contracts and Shared Platforms in Sustainable Health Care: Systematic Review

The second factor concerns data privacy and security. Security, privacy, and data privacy represented the highest contributions to this factor (security: 8.191%; privacy: 4.498%; data privacy: 4.026%; together: 16.715%). Finally, the third factor is concerned with the processes themselves. Supply chain and supply chains had the highest contributions (supply chain: 5.135%; supply chains: 10.066%; together: 15.2%). Factorial analysis. Io MT: Internet of Medical Things; IPFS: Inter Planetary File System.

Carlos Antonio Marino, Claudia Diaz Paz

JMIR Med Inform 2025;13:e58575

Regulation and Compliance in Telemedicine: Viewpoint

Regulation and Compliance in Telemedicine: Viewpoint

HIPAA—known for its privacy and security rules establishing national standards for protecting personal health information (PHI)—mandates providers use telemedicine platforms that provide privacy and security by not storing or having sufficient ways to prevent breaches of PHI [9]. The PHE flexibilities waived the need to use HIPAA-compliant telemedicine platforms. This flexibility eased the rapid, large-scale transition to telemedicine use during COVID-19 [9,10].

Julia Ivanova, Mollie R Cummins, Triton Ong, Hiral Soni, Janelle Barrera, Hattie Wilczewski, Brandon Welch, Brian Bunnell

J Med Internet Res 2025;27:e53558

A Proposed mHealth Intervention to Address Patient Barriers to Colposcopy Attendance: Qualitative Interview Study of Clinic Staff and Patient Perspectives

A Proposed mHealth Intervention to Address Patient Barriers to Colposcopy Attendance: Qualitative Interview Study of Clinic Staff and Patient Perspectives

Some participants raised concerns about text messages in terms of fatigue and privacy. Some patients wanted the ability to opt in or out of threads, and a few preferred to have information sent by email or accessible through an app so they could peruse the intervention information in one place at one time at their convenience. Younger patients worried that someone else might see a message notification containing sensitive information on their phone screen.

Jennifer R Hemler, Rachel B Wagner, Brittany Sullivan, Myneka Macenat, Erin K Tagai, Jazmarie L Vega, Enrique Hernandez, Suzanne M Miller, Kuang-Yi Wen, Charletta A Ayers, Mark H Einstein, Shawna V Hudson, Racquel E Kohler

JMIR Form Res 2025;9:e55043

Virtual Reality–Based Psychological Intervention for Young Adults Living With HIV: Protocol for a Randomized Controlled Trial

Virtual Reality–Based Psychological Intervention for Young Adults Living With HIV: Protocol for a Randomized Controlled Trial

To ensure privacy and reduce reporting bias, this study was conducted anonymously, and the VR intervention was free during the study. The fixed and unique number assigned to each research subject when they were enrolled was used as the basis for information matching. After each collection of questionnaires, data was downloaded and backed up on the same day, and the questionnaire platform data was deleted in time.

Hanxi Zhang, Jing Han, Ye Su, Hongxin Zhao, Fujie Zhang

JMIR Res Protoc 2025;14:e55633