This paper is in the following e-collection/theme issue:

Reviews on Human Factors (73) Electronic Health Records (1296) Participatory Medicine & E-Patients (869) Clinical Informatics (1300) Demographics of Users, Social & Digital Divide (903) Use and User Demographics of mHealth (396) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (691) Standards and Interoperability (129) Organizational Issues (217) Ethics, Privacy, and Legal Issues (611) Health Information Exchange (143)

Published on in Vol 9, No 1 (2022): Jan-Mar

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/20702, first published .
Factors Associated With Willingness to Share Health Information: Rapid Review

Factors Associated With Willingness to Share Health Information: Rapid Review

Factors Associated With Willingness to Share Health Information: Rapid Review

Authors of this article:

Iffat Naeem1 Author Orcid Image ;   Hude Quan2 Author Orcid Image ;   Shaminder Singh3 Author Orcid Image ;   Nashit Chowdhury2 Author Orcid Image ;   Mohammad Chowdhury4 Author Orcid Image ;   Vineet Saini1, 2, 5 Author Orcid Image ;   Turin TC2, 6 Author Orcid Image
Article Authors Cited by (20) Tweetations (2) Metrics

Journals

  1. Kassam I, Ilkina D, Kemp J, Roble H, Carter-Langford A, Shen N. Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review. Journal of Medical Internet Research 2023;25:e42507 View
  2. Kerr J, Naegelin M, Benk M, v Wangenheim F, Meins E, Viganò E, Ferrario A. Investigating Employees’ Concerns and Wishes Regarding Digital Stress Management Interventions With Value Sensitive Design: Mixed Methods Study. Journal of Medical Internet Research 2023;25:e44131 View
  3. Heaslip V, Shannon M, Janes G, Phillips N, Hamilton C, Reid J, Oxholm R, Lüdemann B, Gentil J, Langins M. Engaging nursing and midwifery policymakers and practitioners in digital transformation: an international nursing and midwifery perspective. BMJ Leader 2025;9(2):185 View
  4. Altinay Z. Understanding cooperative contact tracing: Factors explored through privacy management theories. Social Science & Medicine 2024;356:117137 View
  5. O’Neill C, Duckworth E, Shah R, Jayakumar P. Evaluating Patient Perceptions of Smartphone Use for Active and Passive Collection of Health Data. Current Orthopaedic Practice 2024;35(6):250 View
  6. von Kalckreuth N, Feufel M. Disease characteristics influence the privacy calculus to adopt electronic health records: A survey study in Germany. DIGITAL HEALTH 2024;10 View
  7. Roth M, Hawkins D, Merrill J, Henderson T. Childhood Cancer-Connect: Identifying solutions to elevating the cancer experience for adolescents and young adults with cancer. JNCI: Journal of the National Cancer Institute 2025;117(2):229 View
  8. Jaswal H, Ialomiteanu A, Hamilton H, Rehm J, Wells S, Shield K. Willingness of population health survey participants to provide personal health information and biological samples. BMC Public Health 2024;24(1) View
  9. Ageng K, Inthiran A. Exploring Pregnancy-Related Information-Sharing Behavior Among First-Time Southeast Asian Fathers: Qualitative Semistructured Interview Study. JMIR Pediatrics and Parenting 2024;7:e58482 View
  10. Honey A, Hancock N, Glover H, Scanlan J, Cao Y, Povolny A, Orr M, Rose G, Govindasamy S, Smith L, Ahmadapour N. Collection and sharing of health information in mental health and related systems in Australia: perspectives of people who access mental health services. BMC Psychiatry 2024;24(1) View
  11. Smoła P, Młoźniak I, Wojcieszko M, Zwierczyk U, Kobryn M, Rzepecka E, Duplaga M. The perception of facilitators and barriers to the use of e-health solutions in Poland: a qualitative study. BMC Medical Informatics and Decision Making 2024;24(1) View
  12. Lee P, Mendoza D, Kaiser M, Lott E, Singh G, Grando A. FHIR Granular Sensitive Data Segmentation. Applied Clinical Informatics 2025;16(01):156 View
  13. Shukla A, Goh J, Agarwal L. The illusion of trust and the paradox of disclosure: how fake physician reviews exploit privacy concerns. Internet Research 2025 View
  14. Cai Y, Kamarudin S, Nujaimi S. Willingness to share information on social media: a systematic literature review (2020–2024). Frontiers in Psychology 2025;16 View
  15. Hendricks-Sturrup R, Lu C. A survey of individuals’ willingness to share real-world data postmortem with researchers. Journal of Clinical and Translational Science 2024;8 View
  16. Fukuda Y, Fukuda K. Public Attitudes and Predictors of Public Awareness of Personal Digital Health Data Sharing for Research: Cross-Sectional Study in Japan. JMIR Human Factors 2025;12:e64192 View
  17. Crawford M, Haggerty D, Jones N. Characteristics of Participants Who Consented to Share Data with a Public Health Registry After an Environmental Disaster. International Journal of Environmental Research and Public Health 2025;22(11):1630 View

Books/Policy Documents

  1. Silva P, Sweitzer N. Comprehensive Precision Medicine. View
  2. Douthit B, Richesson R. Clinical Research Informatics. View

Conference Proceedings

  1. Mandl M, Malin C, Thalmann S. Resilience Through Digital Innovation: Enabling the Twin Transition. It’s a Match! – Finding the Perfect Participants for Health Research. Study on the Willingness to Share Health Data with a Research Referral Portal View