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This paper is in the following e-collection/theme issue:

User-Centered Design Case Studies (765) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1996) Participatory Medicine & E-Patients (905) Peer-to-Peer Support and Online Communities (850) Patient Engagement and Empowerment (138)

Published on in Vol 13 (2026)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/80230, first published .
Development, Implementation, and Preliminary Results of a Novel Social Network for Rare Disease Communities: Mixed Methods Study

Development, Implementation, and Preliminary Results of a Novel Social Network for Rare Disease Communities: Mixed Methods Study

Development, Implementation, and Preliminary Results of a Novel Social Network for Rare Disease Communities: Mixed Methods Study

Authors of this article:

Lara Fendrich1, 2 Author Orcid Image ;   Henriette Högl3 Author Orcid Image ;   Ralf Schmidt4 Author Orcid Image ;   David Bascom5 Author Orcid Image ;   Armin Berger6 Author Orcid Image ;   Max Lübbering6 Author Orcid Image ;   Gundula Ernst7 Author Orcid Image ;   Justus Schumacher1 Author Orcid Image ;   Sabrina Hölzer8 Author Orcid Image ;   Lorenz Grigull1 Author Orcid Image
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