Published on in Vol 6, No 4 (2019): Oct-Dec

Preprints (earlier versions) of this paper are available at, first published .
Using Patient Portals to Improve Patient Outcomes: Systematic Review

Using Patient Portals to Improve Patient Outcomes: Systematic Review

Using Patient Portals to Improve Patient Outcomes: Systematic Review


  1. Power K, McCrea Z, White M, Breen A, Dunleavy B, O’Donoghue S, Jacquemard T, Lambert V, El‐Naggar H, Delanty N, Doherty C, Fitzsimons M. The development of an epilepsy electronic patient portal: Facilitating both patient empowerment and remote clinician‐patient interaction in a post‐COVID‐19 world. Epilepsia 2020;61(9):1894 View
  2. Haga S. Toward digital-based interventions for medication adherence and safety. Expert Opinion on Drug Safety 2020;19(6):735 View
  3. Otokiti A, Williams K, Warsame L. Impact of Digital Divide on the Adoption of Online Patient Portals for Self-Motivated Patients. Healthcare Informatics Research 2020;26(3):220 View
  4. Judson T, Odisho A, Neinstein A, Chao J, Williams A, Miller C, Moriarty T, Gleason N, Intinarelli G, Gonzales R. Rapid design and implementation of an integrated patient self-triage and self-scheduling tool for COVID-19. Journal of the American Medical Informatics Association 2020;27(6):860 View
  5. van de Graaf D, Schoonman G, Habibović M, Pauws S. Towards eHealth to support the health journey of headache patients: a scoping review. Journal of Neurology 2021;268(10):3646 View
  6. Lee J, Rawl S, Dickinson S, Teal E, Baker L, Lyu C, Tarver W, Haggstrom D. Communication About Health Information Technology Use Between Patients and Providers. Journal of General Internal Medicine 2020;35(9):2614 View
  7. Thiessen M, Sinclair S, Tang P, Raffin Bouchal S. Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory. Journal of Medical Internet Research 2020;22(10):e20510 View
  8. Jackman K, Dangerfield D, Yang C, Trent M, Kharrazi H, Johnson R, Latkin C. Behavioral Intentions to Use Patient Portals to Disclose HIV and Other Sexually Transmitted Infection Testing Histories with Sexual Partners Among U.S. Sexual Minority Men. AIDS and Behavior 2021;25(4):1199 View
  9. Avdagovska M, Menon D, Stafinski T. Capturing the Impact of Patient Portals Based on the Quadruple Aim and Benefits Evaluation Frameworks: Scoping Review. Journal of Medical Internet Research 2020;22(12):e24568 View
  10. Antonio M, Petrovskaya O, Lau F. The State of Evidence in Patient Portals: Umbrella Review. Journal of Medical Internet Research 2020;22(11):e23851 View
  11. Liljeroos T, Puthoopparambil S, Wallert J, Held C, Olsson E. Self-perceived cognitive status and cognitive challenges associated with cardiac rehabilitation management: experiences of elderly myocardial infarction patients. Disability and Rehabilitation 2022;44(15):3834 View
  12. Tapuria A, Porat T, Kalra D, Dsouza G, Xiaohui S, Curcin V. Impact of patient access to their electronic health record: systematic review. Informatics for Health and Social Care 2021;46(2):194 View
  13. Cross D, Levin Z, Raj M. Patient Portal Use, Perceptions of Electronic Health Record Value, and Self-Rated Primary Care Quality Among Older Adults: Cross-sectional Survey. Journal of Medical Internet Research 2021;23(5):e22549 View
  14. Ammenwerth E, Neyer S, Hörbst A, Mueller G, Siebert U, Schnell-Inderst P. Adult patient access to electronic health records. Cochrane Database of Systematic Reviews 2021;2021(2) View
  15. Clarke M, Fruhling A, Lyden E, Tarrell A, Bernard T, Windle J. Computer Skills Role in Personal Health Record Adoption Among Patients With Heart Disease: A Multi-dimensional Evaluation of Users versus Non-Users (Preprint). JMIR Human Factors 2020 View
  16. Chae S, Lee Y, Han H. Sources of Health Information, Technology Access, and Use Among Non–English-Speaking Immigrant Women: Descriptive Correlational Study. Journal of Medical Internet Research 2021;23(10):e29155 View
  17. Fitzsimons M, Power K, McCrea Z, Kiersey R, White M, Dunleavy B, O'Donoghue S, Lambert V, Delanty N, Doherty C. Democratizing epilepsy care: Utility and usability of an electronic patient portal. Epilepsy & Behavior 2021;122:108197 View
  18. Baek J, Simon-Friedt B, Lopez A, Kolman J, Nicolas J, Jones S, Phillips R, Menser T. Assessing Patient Needs During Natural Disasters: Mixed Methods Analysis of Portal Messages Sent During Hurricane Harvey. Journal of Medical Internet Research 2021;23(9):e31264 View
  19. Lang M, Lemieux S, Hébert J, Sauvageau G, Zawati M. Legal and Ethical Considerations for the Design and Use of Web Portals for Researchers, Clinicians, and Patients: Scoping Literature Review. Journal of Medical Internet Research 2021;23(11):e26450 View
  20. Zocchi M, Robinson S, Ash A, Vimalananda V, Wolfe H, Hogan T, Connolly S, Stewart M, Am L, Netherton D, Shimada S. Patient portal engagement and diabetes management among new portal users in the Veterans Health Administration. Journal of the American Medical Informatics Association 2021;28(10):2176 View
  21. Ganeshan S, Pierce L, Mourad M, Judson T, Kohli M, Odisho A, Brown W. Impact of patient portal-based self-scheduling of diagnostic imaging studies on health disparities. Journal of the American Medical Informatics Association 2022;29(12):2096 View
  22. Schnock K, Roulier S, Butler J, Dykes P, Fiskio J, Gibson B, Lipsitz S, Miller S, Shaykevich S, Bates D, Classen D. Engaging Patients in the Use of Real-Time Electronic Clinical Data to Improve the Safety and Reliability of Their Own Care. Journal of Patient Safety 2022;18(2):e407 View
  23. Carini E, Villani L, Pezzullo A, Gentili A, Barbara A, Ricciardi W, Boccia S. The Impact of Digital Patient Portals on Health Outcomes, System Efficiency, and Patient Attitudes: Updated Systematic Literature Review. Journal of Medical Internet Research 2021;23(9):e26189 View
  24. Ganta T, Appel J, Genes N. Patient portal access for caregivers of adult and geriatric patients: reframing the ethics of digital patient communication. Journal of Medical Ethics 2023;49(3):156 View
  25. Tanhapour M, Safaei A, Shakibian H. Personal health record system based on social network analysis. Multimedia Tools and Applications 2022;81(19):27601 View
  26. Liang S, Stults C, Jones V, Huang Q, Sutton J, Tennyson G, Chan A. Effects of Behavioral Economics–Based Messaging on Appointment Scheduling Through Patient Portals and Appointment Completion: Observational Study. JMIR Human Factors 2022;9(1):e34090 View
  27. Griffin A, Troszak L, Van Campen J, Midboe A, Zulman D. Tablet distribution to veterans: an opportunity to increase patient portal adoption and use. Journal of the American Medical Informatics Association 2022;30(1):73 View
  28. LeLaurin J, Nguyen O, Thompson L, Hall J, Bian J, Cho H, Acharya R, Harle C, Salloum R. Disparities in Pediatric Patient Portal Activation and Feature Use. JAMIA Open 2021;4(3) View
  29. Wang H, Ho A, Wiener R, Sambamoorthi U. The Association of Mobile Health Applications with Self-Management Behaviors among Adults with Chronic Conditions in the United States. International Journal of Environmental Research and Public Health 2021;18(19):10351 View
  30. Mantzourani E, Brooks O, James D, Richards A, Hodson K, Akhtar H, Wakelyn M, White L, Williams R, O’Gorman G, Kervin A, Chess J, Brown C. Development, implementation and evaluation of the digital transformation of renal services in Wales: the journey from local to national. International Journal of Clinical Pharmacy 2023;45(1):4 View
  31. Fant C, Adelman D, Zak C. Post-Cures Act: Implications for Nurse Practitioners. The Journal for Nurse Practitioners 2022;18(10):1102 View
  32. Sun C, Perrin N, Maruthur N, Renda S, Levin S, Han H. Predictors of Follow-Up Appointment No-Shows Before and During COVID Among Adults with Type 2 Diabetes. Telemedicine and e-Health 2023;29(6):851 View
  33. Gleason K, Peereboom D, Wec A, Wolff J. Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations. JAMA Network Open 2022;5(12):e2248696 View
  34. Son H, Nahm E, Zhu S, Galik E, Van de Castle B, Seidl K, Russomanno V. Older Adults' Perception on and Use of Patient Portals. CIN: Computers, Informatics, Nursing 2022;40(1):61 View
  35. MacEwan S, Sieck C, McAlearney A. Geographic Location Impacts Patient Portal Use via Desktop and Mobile Devices. Journal of Medical Systems 2022;46(12) View
  36. Zhao X, Cai X, Malterud A. Framing Effects in Youth E-Cigarette Use Prevention: Individual Text Messages Versus Simulated Text Exchanges. Health Education & Behavior 2023;50(5):683 View
  37. Vick J, Wolff J. A scoping review of person and family engagement in the context of multiple chronic conditions. Health Services Research 2021;56(S1):990 View
  38. Balthazar P, Narayan A, Reid N, Miles R, Flores E. Effect of Sociodemographic Factors on Utilization of an Online Patient Portal to Self-Schedule Screening Mammography: A Cross-Sectional Study. Journal of the American College of Radiology 2022;19(7):866 View
  39. Cross D, Adler-Milstein J, Degenholtz H. Progress Toward Digital Transformation in an Evolving Post-Acute Landscape. Innovation in Aging 2022;6(4) View
  40. Hatch B, Tillotson C, Hoopes M, Huguet N, Marino M, DeVoe J. Patient-level factors associated with receipt of preventive care in the safety net. Preventive Medicine 2022;158:107024 View
  41. Paalimäki-Paakki K, Virtanen M, Henner A, Nieminen M, Kääriäinen M. Effectiveness of Digital Counseling Environments on Anxiety, Depression, and Adherence to Treatment Among Patients Who Are Chronically Ill: Systematic Review. Journal of Medical Internet Research 2022;24(1):e30077 View
  42. Di Tosto G, Walker D, Sieck C, Wallace L, MacEwan S, Gregory M, Scarborough S, Huerta T, McAlearney A. Examining the Relationship between Health Literacy, Health Numeracy, and Patient Portal Use. Applied Clinical Informatics 2022;13(03):692 View
  43. Matthews A, Watson K, Duangchan C, Steffen A, Winn R. A Study Protocol for Increasing Access to Smoking Cessation Treatments for Low-Income Minority Smokers. Frontiers in Public Health 2021;9 View
  44. Kao D. Electronic Health Records and Heart Failure. Heart Failure Clinics 2022;18(2):201 View
  45. Vachon E, Robb B, Haggstrom D. Impact of a Personal Health Record Intervention Upon Surveillance Among Colorectal Cancer Survivors: Feasibility Study. JMIR Cancer 2022;8(3):e34851 View
  46. Thielmann R, Hoving C, Schutgens-Kok E, Cals J, Crutzen R. Patient online access to general practice medical records: A qualitative study on patients’ needs and expectations. Health Information Management Journal 2023:183335832211446 View
  47. Brands M, Gouw S, Beestrum M, Cronin R, Fijnvandraat K, Badawy S. Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review. Journal of Medical Internet Research 2022;24(12):e43086 View
  48. Kho A, Daumit G, Truesdale K, Brown A, Kilbourne A, Ladapo J, Wali S, Cicutto L, Matthews A, Smith J, Davis P, Schoenthaler A, Ogedegbe G, Islam N, Mills K, He J, Watson K, Winn R, Stevens J, Huebschmann A, Szefler S. The National Heart Lung and Blood Institute Disparities Elimination through Coordinated Interventions to Prevent and Control Heart and Lung Disease Alliance. Health Services Research 2022;57(S1):20 View
  49. Davoudi A, Lee N, Luong T, Delaney T, Asch E, Chaiyachati K, Mowery D. Identifying Medication-Related Intents From a Bidirectional Text Messaging Platform for Hypertension Management Using an Unsupervised Learning Approach: Retrospective Observational Pilot Study. Journal of Medical Internet Research 2022;24(6):e36151 View
  50. Deshpande N, Arora V, Vollbrecht H, Meltzer D, Press V. eHealth Literacy and Patient Portal Use and Attitudes: Cross-sectional Observational Study. JMIR Human Factors 2023;10:e40105 View
  51. Matchanova A, Babicz M, Kordovski V, Tierney S, Rahman S, Medina L, Cushman C, Woods S. Does neurocognition contribute to age-related deficits in the online navigation of electronic patient health portals?. Journal of the International Neuropsychological Society 2023;29(7):662 View
  52. Noureldin M, Newman K, Higgins P, Piette J, Resnicow K, Louissaint J, Kenney B, Berinstein J, Waljee A, Zhu J, Cohen-Mekelburg S. Profiles of Web-based Portal Users with Inflammatory Bowel Disease. Inflammatory Bowel Diseases 2023 View
  53. Miller H, Lindo S, Fish L, Roberts J, Stover J, Schwark E, Eberlein N, Mack D, Falkovic M, Makarushka C, Chatterjee R. Describing current use, barriers, and facilitators of patient portal messaging for research recruitment: Perspectives from study teams and patients at one institution. Journal of Clinical and Translational Science 2023;7(1) View
  54. Sands D. Beyond the EHR: How Digital Health Tools Foster Participatory Health and Self-Care for Patients with Diabetes. American Journal of Medicine Open 2023;10:100043 View
  55. Thielmann R, Hoving C, Cals J, Crutzen R. The Effects of Online Access to General Practice Medical Records Perceived by Patients: Longitudinal Survey Study. Journal of Medical Internet Research 2023;25:e47659 View
  56. Wynn C, Fiks A, Localio R, Shults J, Nekrasova E, Shone L, Torres A, Griffith M, Unger R, Ware L, Kelly M, Stockwell M. Examination of Text Message Plans and Baseline Usage of Families Enrolled in a Text Message Influenza Vaccine Reminder Trial: Survey Study. JMIR Formative Research 2023;7:e39576 View
  57. Alturkistani A, Greenfield G, Beaney T, Norton J, Costelloe C. Cross-sectional analyses of online appointment booking and repeat prescription ordering user characteristics in general practices of England in the years 2018–2020. BMJ Open 2023;13(10):e068627 View
  58. Alkir-Yurt S, Dees M, Olthuis G, Braspenning J. Using the capability approach to better understand patient portals in primary care; a scoping review. Health Policy and Technology 2023;12(4):100790 View
  59. Cascini F, Gentili A, Causio F, Altamura G, Melnyk A, Beccia F, Pappalardo C, Lontano A, Ricciardi W. Strengthening and promoting digital health practice: results from a Global Digital Health Partnership’s survey. Frontiers in Public Health 2023;11 View
  60. Kalambo M, Candelaria R, Omofoye T, Nghiem T, Miller D. The Impact of Online Self-Scheduling Platform Optimization on Patient Directed Access to Screening Mammography Appointments During the COVID-19 Pandemic | A Single Institution Experience. Journal of Health Care and Research 2023;4(2):67 View
  61. Gleason K, Wu M, Wec A, Powell D, Zhang T, Gamper M, Green A, Nothelle S, Amjad H, Wolff J. Use of the patient portal among older adults with diagnosed dementia and their care partners. Alzheimer's & Dementia 2023 View
  62. Gleason K, Powell D, Wec A, Zou X, Gamper M, Peereboom D, Wolff J. Patient portal interventions: a scoping review of functionality, automation used, and therapeutic elements of patient portal interventions. JAMIA Open 2023;6(3) View
  63. Petrovskaya O, Karpman A, Schilling J, Singh S, Wegren L, Caine V, Kusi-Appiah E, Geen W. Patient and Health Care Provider Perspectives on Patient Access to Test Results via Web Portals: Scoping Review. Journal of Medical Internet Research 2023;25:e43765 View
  64. Son E, Nahm E. Adult Patients’ Experiences of Using a Patient Portal With a Focus on Perceived Benefits and Difficulties, and Perceptions on Privacy and Security: Qualitative Descriptive Study. JMIR Human Factors 2023;10:e46044 View
  65. Chivela F, Burch A, Asagbra O. An Assessment of Patient Portal Messaging Use by Patients With Multiple Chronic Conditions Living in Rural Communities: Retrospective Analysis. Journal of Medical Internet Research 2023;25:e44399 View
  66. Chang H, Choi J, Shim J, Kim M, Choi M. Benefits of Information Technology in Healthcare: Artificial Intelligence, Internet of Things, and Personal Health Records. Healthcare Informatics Research 2023;29(4):323 View
  67. Fridriksdottir N, Ingadottir B, Skúladóttir K, Zoëga S, Gunnarsdóttir S. Supportive digital health service during cancer chemotherapy: A single arm before and after feasibility study (Preprint). JMIR Formative Research 2023 View

Books/Policy Documents

  1. Cross D, Adler-Milstein J, Holmgren A. Responding to the Grand Challenges in Health Care via Organizational Innovation. View
  2. van der Weijden T, van der Kraan J, Wensing M. Implementatie. View
  3. Del Fiol G. Clinical Decision Support and Beyond. View