This paper is in the following e-collection/theme issue:

Focus Groups and Qualitative Research with Users (611) Ethics, Privacy, and Legal Issues (379) Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (623) Secondary Use of Clinical Data for Research and Surveillance (260) Big Data (174) Policy (39) Health Information Exchange (58)

Published on in Vol 9 , No 3 (2022) :Jul-Sep

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/36797, first published .
Patients’ and Publics’ Preferences for Data-Intensive Health Research Governance: Survey Study

Patients’ and Publics’ Preferences for Data-Intensive Health Research Governance: Survey Study

Patients’ and Publics’ Preferences for Data-Intensive Health Research Governance: Survey Study

Authors of this article:

Sam H A Muller 1 Author Orcid Image ;   Ghislaine J M W van Thiel 1 Author Orcid Image ;   Marilena Vrana 2 Author Orcid Image ;   Menno Mostert 1 Author Orcid Image ;   Johannes J M van Delden 1 Author Orcid Image
Article Authors Cited by (2) Tweetations (11) Metrics

Sam H A Muller   1 , MSc ;   Ghislaine J M W van Thiel   1 , MSc, PhD ;   Marilena Vrana   2 , MA ;   Menno Mostert   1 , LLM, PhD ;   Johannes J M van Delden   1 , MD, PhD

1 Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, NL

2 European Heart Network, Brussels, BE

Corresponding Author:

  • Sam H A Muller, MSc
  • Department of Medical Humanities
  • Julius Center for Health Sciences and Primary Care
  • University Medical Center Utrecht, Utrecht University
  • Universiteitsweg 100
  • Utrecht, 3584 CX
  • NL
  • Phone: 31 623034456
  • Email: s.h.a.muller-4@umcutrecht.nl