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This paper is in the following e-collection/theme issue:

Focus Groups and Qualitative Research for Human Factors Research (1361) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (2001) Consumer & Patient Education and Shared-Decision Making (957) Peer-to-Peer Support and Online Communities (856) User-Centered Design Case Studies (769) User Needs and Competencies (517) Social Media for Parenting (50) Caregiving and Parenting for Chronic Pediatric Diseases (122) Family Skills and Family-based Interventions to Support Communication and Social Ties Within Families (56)

Published on in Vol 11 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/57833, first published .
Friends gathered, sharing a smartphone, with pink streamers

Improving Social Media-Based Support Groups for the Rare Disease Community: Interview Study With Patients and Parents of Children with Rare and Undiagnosed Diseases

Improving Social Media-Based Support Groups for the Rare Disease Community: Interview Study With Patients and Parents of Children with Rare and Undiagnosed Diseases

Authors of this article:

Tom A Doyle1 Author Orcid Image ;   Samantha L Vershaw1 Author Orcid Image ;   Erin Conboy2 Author Orcid Image ;   Colin M E Halverson1 Author Orcid Image
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