This paper is in the following e-collection/theme issue:

Participatory Design and Participatory Research (421) User-Centered Design Case Studies (713) Development and Evaluation of Research Methods, Instruments and Tools (750) Usability Evaluation Case Studies (259) Focus Groups and Qualitative Research for Human Factors Research (1222) Mobile Health (mhealth) (3476) Design and Formative Evaluation of Mobile Apps (810)

Published on in Vol 12 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/59485, first published .
Building a Decentralized Biobanking App for Research Transparency and Patient Engagement: Participatory Design Study

Building a Decentralized Biobanking App for Research Transparency and Patient Engagement: Participatory Design Study

Building a Decentralized Biobanking App for Research Transparency and Patient Engagement: Participatory Design Study

Authors of this article:

Ananya Dewan1 Author Orcid Image ;   M Eifler2 Author Orcid Image ;   Amelia Hood3 Author Orcid Image ;   William Sanchez2 Author Orcid Image ;   Marielle Gross2, 3 Author Orcid Image
Article Authors Cited by (4) Tweetations Metrics

Journals

  1. Dewan A, Rubin J, Gross M. Informed Consensus: The Future of Respect for Persons in Biomedical Research. The American Journal of Bioethics 2025;25(4):142 View
  2. Sanchez W, Dewan A, Budd E, Eifler M, Miller R, Kahn J, Macis M, Gross M. Decentralized Biobanking Apps for Patient Tracking of Biospecimen Research: Real-World Usability and Feasibility Study. JMIR Bioinformatics and Biotechnology 2025;6:e70463 View
  3. Gross M, Dewan A, Sabharwal K, Linkous A, Eifler M, Sanchez W, Miller R, Macis M, Rubin J. Decentralized Biobanking Pathway to Precision Medicine: Futures Study. Journal of Medical Internet Research 2025;27:e73965 View
  4. Dewan A, Altiery De Jesus V, Budd E, Sanchez W, Kahn J, Miller R, Macis M, Gross M. Decentralized Biobanking to Empower Patient Engagement in Biospecimen Research: Operational Feasibility Case Study. Biopreservation and Biobanking 2025 View