Personal Health Record Software for Neuroendocrine Tumors: Patient-Centered Design Approach

Juan Pablo Hourcade   ^{1 *} , PhD ;   Michael O'Rorke   ^{2, 3 *} , PhD ;   Elizabeth Chrischilles   ^{2, 3} , PhD ;   Nicholas J Rudzianski   ² , BS ;   Brian Gryzlak   ² , MSW, MA ;   Kerry Peterman   ¹ , BA ;   Chris Ortman   ⁴ , BS ;   Sam Wolstencroft   ⁴ , BA ;   Margaret Bean   ⁵ , MEd ;   Elyse Gellerman   ⁶ , MHS ;   Josh A Mailman   ⁷ , MBA ;   Maryann Wahmann   ⁸ , HS

¹ Department of Computer Science, University of Iowa, Iowa City, IA, United States

² College of Public Health, University of Iowa, Iowa City, IA, United States

³ Holden Comprehensive Cancer Center, University of Iowa, Iowa City, IA, United States

⁴ Institute for Clinical and Translational Science, University of Iowa, Iowa City, IA, United States

⁵ Healing NET, Nashville, TN, United States

⁶ Neuroendocrine Tumor Research Foundation, Boston, MA, United States

⁷ NorCal CarciNET Community, San Jose, CA, United States

⁸ Neuroendocrine Cancer Awareness Network, Fort Mill, SC, United States

*these authors contributed equally