This paper is in the following e-collection/theme issue:

Focus Groups and Qualitative Research for Human Factors Research (880) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (591) Participatory Design and Participatory Research (333) Design and Usability of Clinical Software and EHRs (271)

Published on in Vol 3, No 2 (2016): Jul-Dec

Integrating Patient-Generated Health Data Into Clinical Care Settings or Clinical Decision-Making: Lessons Learned From Project HealthDesign

Integrating Patient-Generated Health Data Into Clinical Care Settings or Clinical Decision-Making: Lessons Learned From Project HealthDesign

Integrating Patient-Generated Health Data Into Clinical Care Settings or Clinical Decision-Making: Lessons Learned From Project HealthDesign

Authors of this article:

Deborah J Cohen1 Author Orcid Image ;   Sara R Keller1 Author Orcid Image ;   Gillian R Hayes2 Author Orcid Image ;   David A Dorr3 Author Orcid Image ;   Joan S Ash3 Author Orcid Image ;   Dean F Sittig4 Author Orcid Image
Article Authors Cited by (87) Tweetations (17) Metrics

Journals

  1. Weatherall J, Paprocki Y, Meyer T, Kudel I, Witt E. Sleep Tracking and Exercise in Patients With Type 2 Diabetes Mellitus (Step-D): Pilot Study to Determine Correlations Between Fitbit Data and Patient-Reported Outcomes. JMIR mHealth and uHealth 2018;6(6):e131 View
  2. Gordon W, Catalini C. Blockchain Technology for Healthcare: Facilitating the Transition to Patient-Driven Interoperability. Computational and Structural Biotechnology Journal 2018;16:224 View
  3. Lober W, Evans H. Patient-Generated Health Data in Surgical Site Infection: Changing Clinical Workflow and Care Delivery. Surgical Infections 2019;20(7):571 View
  4. Chung C, Wang Q, Schroeder J, Cole A, Zia J, Fogarty J, Munson S. Identifying and Planning for Individualized Change. Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies 2019;3(1):1 View
  5. Wesley D, Schubel L, Hsiao C, Burn S, Howe J, Kellogg K, Lincoln A, Kim B, Ratwani R. A socio-technical systems approach to the use of health IT for patient reported outcomes: Patient and healthcare provider perspectives. Journal of Biomedical Informatics 2019;100:100048 View
  6. Nittas V, Mütsch M, Ehrler F, Puhan M. Electronic patient-generated health data to facilitate prevention and health promotion: a scoping review protocol. BMJ Open 2018;8(8):e021245 View
  7. Shaw R, Yang Q, Barnes A, Hatch D, Crowley M, Vorderstrasse A, Vaughn J, Diane A, Lewinski A, Jiang M, Stevenson J, Steinberg D. Self-monitoring diabetes with multiple mobile health devices. Journal of the American Medical Informatics Association 2020;27(5):667 View
  8. Wong C, Madanay F, Ozer E, Harris S, Moore M, Master S, Moreno M, Weitzman E. Digital Health Technology to Enhance Adolescent and Young Adult Clinical Preventive Services: Affordances and Challenges. Journal of Adolescent Health 2020;67(2):S24 View
  9. Johnson L, Shapiro M, Mankoff J. Removing the Mask of Average Treatment Effects in Chronic Lyme Disease Research Using Big Data and Subgroup Analysis. Healthcare 2018;6(4):124 View
  10. Martinez V, Marquard J, Saver B, Garber L, Preusse P. Consumer Health Informatics Interventions Must Support User Workflows, Be Easy-To-Use, and Improve Cognition: Applying the SEIPS 2.0 Model to Evaluate Patients’ and Clinicians’ Experiences with the CONDUIT-HID Intervention. International Journal of Human–Computer Interaction 2017;33(4):333 View
  11. Lewinski A, Drake C, Shaw R, Jackson G, Bosworth H, Oakes M, Gonzales S, Jelesoff N, Crowley M. Bridging the integration gap between patient-generated blood glucose data and electronic health records. Journal of the American Medical Informatics Association 2019;26(7):667 View
  12. Wolff J, Mulcahy J, Roth D, Cenzer I, Kasper J, Huang J, Covinsky K. Long‐Term Nursing Home Entry: A Prognostic Model for Older Adults with a Family or Unpaid Caregiver. Journal of the American Geriatrics Society 2018;66(10):1887 View
  13. Bach K, Marling C, Mork P, Aamodt A, Mair F, Nicholl B. Design of a clinician dashboard to facilitate co-decision making in the management of non-specific low back pain. Journal of Intelligent Information Systems 2019;52(2):269 View
  14. Austin E, Lee J, Amtmann D, Bloch R, Lawrence S, McCall D, Munson S, Lavallee D. Use of patient-generated health data across healthcare settings: implications for health systems. JAMIA Open 2020;3(1):70 View
  15. Adler-Milstein J, Nong P. Early experiences with patient generated health data: health system and patient perspectives. Journal of the American Medical Informatics Association 2019;26(10):952 View
  16. Reading M, Merrill J. Converging and diverging needs between patients and providers who are collecting and using patient-generated health data: an integrative review. Journal of the American Medical Informatics Association 2018;25(6):759 View
  17. Alpert J, Manini T, Roberts M, Kota N, Mendoza T, Solberg L, Rashidi P. Secondary care provider attitudes towards patient generated health data from smartwatches. npj Digital Medicine 2020;3(1) View
  18. Van Citters A, Gifford A, Brady C, Dunitz J, Elmhirst M, Flath J, Laguna T, Moore B, Prickett M, Riordan M, Savant A, Gore W, Jian S, Soper M, Marshall B, Nelson E, Sabadosa K. Formative evaluation of a dashboard to support coproduction of healthcare services in cystic fibrosis. Journal of Cystic Fibrosis 2020;19(5):768 View
  19. Nittas V, Lun P, Ehrler F, Puhan M, Mütsch M. Electronic Patient-Generated Health Data to Facilitate Disease Prevention and Health Promotion: Scoping Review. Journal of Medical Internet Research 2019;21(10):e13320 View
  20. Vest J, Hilts K, Ancker J, Unruh M, Jung H. Usage of query-based health information exchange after event notifications. JAMIA Open 2019;2(3):291 View
  21. Abdolkhani R, Gray K, Borda A, DeSouza R. Quality Assurance of Health Wearables Data: Participatory Workshop on Barriers, Solutions, and Expectations. JMIR mHealth and uHealth 2020;8(1):e15329 View
  22. Abdolkhani R, Gray K, Borda A, DeSouza R. Patient-generated health data management and quality challenges in remote patient monitoring. JAMIA Open 2019;2(4):471 View
  23. Harrington L. Electronic Person-Generated Health Data. AACN Advanced Critical Care 2019;30(3):217 View
  24. Masterson Y, Brady E, Miller A. Informational Practices of Postacute Brain Injury Patients During Personal Recovery: Qualitative Study. Journal of Participatory Medicine 2019;11(4):e15174 View
  25. Lordon R, Mikles S, Kneale L, Evans H, Munson S, Backonja U, Lober W. How patient-generated health data and patient-reported outcomes affect patient–clinician relationships: A systematic review. Health Informatics Journal 2020;26(4):2689 View
  26. Endriyas M, Alano A, Mekonnen E, Kawza A, Lemango F, Ashkenazi I. Decentralizing evidence-based decision-making in resource limited setting: A case of SNNP region, Ethiopia. PLOS ONE 2020;15(7):e0236637 View
  27. West P, Van Kleek M, Giordano R, Weal M, Shadbolt N. Information Quality Challenges of Patient-Generated Data in Clinical Practice. Frontiers in Public Health 2017;5 View
  28. Cresswell K, McKinstry B, Wolters M, Shah A, Sheikh A. Five key strategic priorities of integrating patient generated health data into United Kingdom electronic health records. BMJ Health & Care Informatics 2018;25(4):254 View
  29. Hawig D, Zhou C, Fuhrhop S, Fialho A, Ramachandran N. Designing a Distributed Ledger Technology System for Interoperable and General Data Protection Regulation–Compliant Health Data Exchange: A Use Case in Blood Glucose Data. Journal of Medical Internet Research 2019;21(6):e13665 View
  30. Wu D, Xin C, Bindhu S, Xu C, Sachdeva J, Brown J, Jung H. Clinician Perspectives and Design Implications in Using Patient-Generated Health Data to Improve Mental Health Practices: Mixed Methods Study. JMIR Formative Research 2020;4(8):e18123 View
  31. Ahn S, Zhiang J, Kim H, Chang S, Shin J, Kim M, Lee Y, Lee J, Park Y. Postvaccination Fever Response Rates in Children Derived Using the Fever Coach Mobile App: A Retrospective Observational Study. JMIR mHealth and uHealth 2019;7(4):e12223 View
  32. Ye Q, Patel R, Khan U, Boren S, Kim M. Evaluation of provider documentation patterns as a tool to deliver ongoing patient‐centred diabetes education and support. International Journal of Clinical Practice 2020;74(3) View
  33. Feller D, Burgermaster M, Levine M, Smaldone A, Davidson P, Albers D, Mamykina L. A visual analytics approach for pattern-recognition in patient-generated data. Journal of the American Medical Informatics Association 2018;25(10):1366 View
  34. Dugan J, Ahmed S, Vincent M, Perry R, Young C. Managing Diabetes in the Digital Age. Physician Assistant Clinics 2020;5(2):177 View
  35. Dimaguila G, Batchelor F, Merolli M, Gray K. ‘We are very individual’: anticipated effects on stroke survivors of using their person-generated health data. BMJ Health & Care Informatics 2020;27(3):e100149 View
  36. Gandrup J, Ali S, McBeth J, van der Veer S, Dixon W. Remote symptom monitoring integrated into electronic health records: A systematic review. Journal of the American Medical Informatics Association 2020;27(11):1752 View
  37. Johnson L, Shapiro M, Stricker R, Vendrow J, Haddock J, Needell D. Antibiotic Treatment Response in Chronic Lyme Disease: Why Do Some Patients Improve While Others Do Not?. Healthcare 2020;8(4):383 View
  38. Spinazze P, Aardoom J, Chavannes N, Kasteleyn M. The Computer Will See You Now: Overcoming Barriers to Adoption of Computer-Assisted History Taking (CAHT) in Primary Care. Journal of Medical Internet Research 2021;23(2):e19306 View
  39. Luo Y, Oh C, Jean B, Choe E. Interrelationships Between Patients’ Data Tracking Practices, Data Sharing Practices, and Health Literacy: Onsite Survey Study. Journal of Medical Internet Research 2020;22(12):e18937 View
  40. Lee J, Kim H, Kim J. Out-of-Hospital Data: Patient Generated Health Data. The Journal of Korean Diabetes 2020;21(3):149 View
  41. Hewitt C, Lloyd K, Tariq S, Durrant A, Claisse C, Kasadha B, Gibbs J. Patient-generated data in the management of HIV: a scoping review. BMJ Open 2021;11(5):e046393 View
  42. Schueller S. Grand Challenges in Human Factors and Digital Health. Frontiers in Digital Health 2021;3 View
  43. Rogers C, Moutinho Jr T, Liu X, Valdez R. Designing Consumer Health Information Technology to Support Biform and Articulation Work: A Qualitative Study of Diet and Nutrition Management as Patient Work. JMIR Human Factors 2021;8(3):e27452 View
  44. Abdolkhani R, Gray K, Borda A, DeSouza R. Recommendations for the Quality Management of Patient-Generated Health Data in Remote Patient Monitoring: Mixed Methods Study. JMIR mHealth and uHealth 2023;11:e35917 View
  45. Dullabh P, Heaney-Huls K, Lobach D, Hovey L, Sandberg S, Desai P, Lomotan E, Swiger J, Harrison M, Dymek C, Sittig D, Boxwala A. The technical landscape for patient-centered CDS: progress, gaps, and challenges. Journal of the American Medical Informatics Association 2022;29(6):1101 View
  46. Dullabh P, Sandberg S, Heaney-Huls K, Hovey L, Lobach D, Boxwala A, Desai P, Berliner E, Dymek C, Harrison M, Swiger J, Sittig D. Challenges and opportunities for advancing patient-centered clinical decision support: findings from a horizon scan. Journal of the American Medical Informatics Association 2022;29(7):1233 View
  47. Su Z, He L, Jariwala S, Zheng K, Chen Y. "What is Your Envisioned Future?": Toward Human-AI Enrichment in Data Work of Asthma Care. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW2):1 View
  48. Kawu A, Hederman L, Doyle J, O'Sullivan D. Patient generated health data and electronic health record integration, governance and socio-technical issues: A narrative review. Informatics in Medicine Unlocked 2023;37:101153 View
  49. O’Donnell H, Suresh S, Webber E, Alexander G, Chung S, Hamling A, Kirkendall E, Mann A, Sadeghian R, Shelov E, Wiesenthal A. Electronic Documentation in Pediatrics: The Rationale and Functionality Requirements. Pediatrics 2020;146(1):00 View
  50. Lobach D, Boxwala A, Kashyap N, Heaney-Huls K, Chiao A, Rafter T, Lomotan E, Harrison M, Dymek C, Swiger J, Dullabh P. Integrating a Patient Engagement App into an Electronic Health Record-Enabled Workflow Using Interoperability Standards. Applied Clinical Informatics 2022;13(05):1163 View
  51. Davis S, Antonio M, Smith M, Burgener P, Lavallee D, Price M, Fletcher S, Lau F. Paving the Way for Electronic Patient-Centered Measurement in Team-Based Primary Care: Integrated Knowledge Translation Approach. JMIR Formative Research 2022;6(3):e33584 View
  52. Stetson P, McCleary N, Osterman T, Ramchandran K, Tevaarwerk A, Wong T, Sugalski J, Akerley W, Mercurio A, Zachariah F, Yamzon J, Stillman R, Gabriel P, Heinrichs T, Kerrigan K, Patel S, Gilbert S, Weiss E. Adoption of Patient-Generated Health Data in Oncology: A Report From the NCCN EHR Oncology Advisory Group. Journal of the National Comprehensive Cancer Network 2022:1 View
  53. Omoloja A, Vundavalli S. Patient generated health data: Benefits and challenges. Current Problems in Pediatric and Adolescent Health Care 2021;51(11):101103 View
  54. Virgolici H, Ceban D, Raducu R, Purcarea V. Blockchain technology used in medicine. A brief survey. Romanian Journal of Military Medicine 2022;125(3):506 View
  55. Kinouchi K, Ohashi K. Assessing Engagement With Patient-Generated Health Data Recording and Its Impact on Health Behavior Changes in Multicomponent Interventions: Supplementary Analysis. JMIR Formative Research 2022;6(5):e35471 View
  56. Ford D, Warr E, Hamill C, He W, Pekar E, Harvey J, DuBose-Morris R, McGhee K, King K, Lenert L. Not Home Alone: Leveraging Telehealth and Informatics to Create a Lean Model for COVID-19 Patient Home Care. Telemedicine Reports 2021;2(1):239 View
  57. Simpson E, Brown R, Sillence E, Coventry L, Lloyd K, Gibbs J, Tariq S, Durrant A. Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review. Frontiers in Public Health 2021;9 View
  58. Antonio M, Davis S, Smith M, Burgener P, Price M, Lavallee D, Fletcher S, Lau F. Advancing digital patient-centered measurement methods for team-based care. DIGITAL HEALTH 2022;8:205520762211454 View
  59. Jin W, Mohan S, Adams M, Hoffe S, Robinson E. The Emerging Role of Digital Therapeutics in Medical, Surgical and Radiation Oncology. Applied Radiation Oncology 2022 View
  60. Malavasi M, Cesario L, Fiordelmondo V, Gherardini A, Hoogerwerf E, Lepore C, Montanari C, Desideri L. Validation of an IoT-based home system for integrated care services: a qualitative investigation involving older adults with multiple chronic health conditions. Journal of Ambient Intelligence and Humanized Computing 2024;15(5):2779 View
  61. Hughes M, Chico T. How Could Sensor-Based Measurement of Physical Activity Be Used in Cardiovascular Healthcare?. Sensors 2023;23(19):8154 View
  62. Cracchiolo J, Arafat W, Atreja A, Bruckner L, Emamekhoo H, Heinrichs T, Raldow A, Smerage J, Stetson P, Sugalski J, Tevaarwerk A. Getting ready for real‐world use of electronic patient‐reported outcomes (ePROs) for patients with cancer: A National Comprehensive Cancer Network ePRO Workgroup paper. Cancer 2023;129(16):2441 View
  63. Staab E, Franco M, Zhu M, Wan W, Gibbons R, Vinci L, Beckman N, Yohanna D, Laiteerapong N. Population Health Management Approach to Depression Symptom Monitoring in Primary Care via Patient Portal: A Randomized Controlled Trial. American Journal of Medical Quality 2023;38(4):188 View
  64. Shenvi E, Boxwala A, Sittig D, Zott C, Lomotan E, Swiger J, Dullabh P. Visualization of Patient-Generated Health Data: A Scoping Review of Dashboard Designs. Applied Clinical Informatics 2023;14(05):913 View
  65. Kim H, Cho B, Jung J, Kim J. Attitudes and perspectives of nurses and physicians in South Korea towards the clinical use of person-generated health data. DIGITAL HEALTH 2023;9 View
  66. Nazi K, Newton T, Armstrong C. Unleashing the Potential for Patient-Generated Health Data (PGHD). Journal of General Internal Medicine 2024;39(S1):9 View
  67. Khatiwada P, Yang B, Lin J, Blobel B. Patient-Generated Health Data (PGHD): Understanding, Requirements, Challenges, and Existing Techniques for Data Security and Privacy. Journal of Personalized Medicine 2024;14(3):282 View
  68. Guardado S, Karampela M, Isomursu M, Grundstrom C. Use of Patient-Generated Health Data From Consumer-Grade Devices by Health Care Professionals in the Clinic: Systematic Review. Journal of Medical Internet Research 2024;26:e49320 View
  69. MacEwan S, Olvera R, Jonnalagadda P, Fareed N, McAlearney A. Patient and Provider Perspectives About the Use of Patient-Generated Health Data During Pregnancy: Qualitative Exploratory Study. JMIR Formative Research 2024;8:e52397 View
  70. Denecke K, Reichenpfader D, Willi D, Kennel K, Bonel H, Nairz K, Cihoric N, Papaux D, von Tengg-Kobligk H. Person-based design and evaluation of MIA, a digital medical interview assistant for radiology. Frontiers in Artificial Intelligence 2024;7 View
  71. Staehelin D, Dolata M, Stöckli L, Schwabe G. How Patient-Generated Data Enhance Patient-Provider Communication in Chronic Care: Field Study in Design Science Research. JMIR Medical Informatics 2024;12:e57406 View
  72. Rauzi M, Akay R, Balakrishnan S, Piper C, Gobert D, Flach A. Current State of Connected Sensor Technologies Used During Rehabilitation Care: Protocol for a Scoping Review. JMIR Research Protocols 2024;13:e60496 View
  73. Craamer C, Timmers T, Siebelt M, Kool R, Diekerhof C, Caron J, Gosens T, van der Weegen W. Completion Rate and Satisfaction With Online Computer-Assisted History Taking Questionnaires in Orthopedics: Multicenter Implementation Report. JMIR Medical Informatics 2024;12:e60655 View
  74. Staehelin D, Dolata M, Rosch S, Färber A, Schwabe G. "Let's embark on a joint health journey" - How Boundary Negotiating Artifacts Influence Patients' Psychological Ownership in Chronic Care. Proceedings of the ACM on Human-Computer Interaction 2024;8(CSCW2):1 View
  75. Tak Y, Kim J, Lee J, Lee Y. Impact of encounters on patient app use: results of a tethered mobile personal health record usage pattern analysis. BMC Health Services Research 2024;24(1) View

Books/Policy Documents

  1. Kannampallil T, Patel V. Cognitive Informatics in Health and Biomedicine. View
  2. Lake E, Bramble J, Greenberg H, Shipman J, Marcus R, Wasden C, Jones K. Strategic Collaborations in Health Sciences Libraries. View
  3. Bainbridge M. Big Data, Big Challenges: A Healthcare Perspective. View
  4. Muraina I, Farouk A. Augmented Intelligence in Healthcare: A Pragmatic and Integrated Analysis. View
  5. Turchioe M, Creber R. Personal Health Informatics. View
  6. Taneja V, Mishra S, Saxena A. Proceedings of Data Analytics and Management. View