Participatory Design and Participatory Research

Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study

Gloria A Aguayo, Catherine Goetzinger, Renza Scibilia, Aurélie Fischer, Till Seuring, Viet-Thi Tran, Philippe Ravaud, Tamás Bereczky, Laetitia Huiart, Guy Fagherazzi

J Med Internet Res 2021 (Dec 23); 23(12):e25743

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The Extent of User Involvement in the Design of Self-tracking Technology for Bipolar Disorder: Literature Review

Shazmin Majid, Stuart Reeves, Grazziela Figueredo, Susan Brown, Alexandra Lang, Matthew Moore, Richard Morriss

JMIR Ment Health 2021 (Dec 20); 8(12):e27991

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A Mobile App to Support Self-management of Chronic Kidney Disease: Development Study

Talar W Markossian, Jason Boyda, Jennifer Taylor, Bella Etingen, François Modave, Ron Price, Holly J Kramer

JMIR Hum Factors 2021 (Dec 15); 8(4):e29197

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Usability of an At-Home Anterior Nares SARS-CoV-2 RT-PCR Sample Collection Kit: Human Factors Feasibility Study

Laura E Strong, Irene Middendorf, Michelle Turner, David K Edwards V, Varun Sama, Joshua Mou, K Colleen Adams

JMIR Hum Factors 2021 (Dec 14); 8(4):e29234

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Creating a Digital Toolkit to Reduce Fatigue and Promote Quality of Life in Multiple Sclerosis: Participatory Design and Usability Study

Sarah Thomas, Andy Pulman, Huseyin Dogan, Nan Jiang, David Passmore, Keith Pretty, Beth Fairbanks, Angela Davies Smith, Peter W Thomas

JMIR Form Res 2021 (Dec 09); 5(12):e19230

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The Application of Human-Centered Design Approaches in Health Research and Innovation: A Narrative Review of Current Practices

Irene Göttgens, Sabine Oertelt-Prigione

JMIR Mhealth Uhealth 2021 (Dec 06); 9(12):e28102

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A Conversational Artificial Intelligence Agent for a Mental Health Care App: Evaluation Study of Its Participatory Design

Morena Danieli, Tommaso Ciulli, Seyed Mahed Mousavi, Giuseppe Riccardi

JMIR Form Res 2021 (Dec 01); 5(12):e30053

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An App-Based Mindfulness-Based Self-compassion Program to Support Caregivers of People With Dementia: Participatory Feasibility Study

Donna Goodridge, Nathan Reis, Jenna Neiser, Tim Haubrich, Bev Westberg, Laura Erickson-Lumb, Jo Storozinski, Cesar Gonzales, Joanne Michael, Allison Cammer, Nathaniel Osgood

JMIR Aging 2021 (Nov 26); 4(4):e28652

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Patients’ Use of Mobile Health for Self-management of Knee Osteoarthritis: Results of a 6-Week Pilot Study

Brittany Shewchuk, Lee A Green, Tanya Barber, Jean Miller, Sylvia Teare, Denise Campbell-Scherer, Kelly J Mrklas, Linda C Li, Nancy Marlett, Tracy Wasylak, Elena Lopatina, Deirdre McCaughey, Deborah A Marshall

JMIR Form Res 2021 (Nov 25); 5(11):e30495

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Evaluating the Acceptability, Feasibility, and Outcomes of Two Methods Involving Patients With Disability in Developing Clinical Guidelines: Crossover Pilot Study

Marie-Eve Lamontagne, Marie-Pierre Gagnon, Kadija Perreault, Véronique Gauthier

J Particip Med 2021 (Nov 23); 13(3):e24319

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Developing Graphic Messages for Vaping Prevention Among Black and Latino Adolescents: Participatory Research Approach

Francisco Cartujano-Barrera, Chiamaka Azogini, Scott McIntosh, Maansi Bansal-Travers, Deborah J Ossip, Ana Paula Cupertino

J Particip Med 2021 (Nov 23); 13(3):e29945

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A Smartphone App for Supporting the Self-management of Daytime Urinary Incontinence in Adolescents: Development and Formative Evaluation Study of URApp

Katie Whale, Lucy Beasant, Anne J Wright, Lucy Yardley, Louise M Wallace, Louise Moody, Carol Joinson

JMIR Pediatr Parent 2021 (Nov 15); 4(4):e26212

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Using Co-design in Mobile Health System Development: A Qualitative Study With Experts in Co-design and Mobile Health System Development

Tyler J Noorbergen, Marc T P Adam, Timm Teubner, Clare E Collins

JMIR Mhealth Uhealth 2021 (Nov 10); 9(11):e27896

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An Embodied Conversational Agent in an eHealth Self-management Intervention for Chronic Obstructive Pulmonary Disease and Chronic Heart Failure: Exploratory Study in a Real-life Setting

Silke ter Stal, Joanne Sloots, Aniel Ramlal, Harm op den Akker, Anke Lenferink, Monique Tabak

JMIR Hum Factors 2021 (Nov 04); 8(4):e24110

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Coproduction, Coeducation, and Patient Involvement: Everyone Included Framework for Medical Education Across Age Groups and Cultures

Amy Price, Aishini Damaraju, Poorna Kushalnagar, Summer Brunoe, Ujwal Srivastava, Marcella Debidda, Larry Chu

JMIR Med Educ 2021 (Nov 03); 7(4):e31846

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Use of a Mobile App for the Process Evaluation of an Intervention in Health Care: Development and Usability Study

Winnie Szu Yun Chin, Alicia Kurowski, Rebecca Gore, Guanling Chen, Laura Punnett, SHIFT Research Team

JMIR Form Res 2021 (Oct 28); 5(10):e20739

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Female Genital Mutilation/Cutting Education for Midwives and Nurses as Informed by Women’s Experiences: Protocol for an Exploratory Sequential Mixed Methods Study

Monica Pilar Diaz, Mary Steen, Angela Brown, Julie-Anne Fleet, Jan Williams

JMIR Res Protoc 2021 (Oct 15); 10(10):e32911

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A Virtual Smash Room for Venting Frustration or Just Having Fun: Participatory Design of Virtual Environments in Digitally Reinforced Cancer Rehabilitation

Johanna Persson, Douglas Clifford, Mattias Wallergård, Ulrika Sandén

JMIR Rehabil Assist Technol 2021 (Oct 07); 8(4):e29763

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Development of a Mobile Health Application for HIV Prevention Among At-Risk Populations in Urban Settings in East Africa: A Participatory Design Approach

Wilhellmuss Mauka, Christopher Mbotwa, Kåre Moen, Hanne Ochieng Lichtwarck, Inga Haaland, Method Kazaura, Germana H Leyna, Melkizedeck T Leshabari, Elia J Mmbaga

JMIR Form Res 2021 (Oct 07); 5(10):e23204

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Designing Videos With and for Adults With ADHD for an Online Intervention: Participatory Design Study and Thematic Analysis of Evaluation

Eivind Flobak, Emilie Sektnan Nordby, Frode Guribye, Robin Kenter, Tine Nordgreen, Astri J Lundervold

JMIR Ment Health 2021 (Sep 14); 8(9):e30292

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